Slow Progress is Still Progress—His Timing, Not Mine

Often I have to remind myself that things don’t happen on my timeline. I’m a self-proclaimed recovering control freak. I’m reminded over and over again that things don’t always go according to my plans, but it’s still a lesson I have to keep learning.

If you would have asked me as a recent high school graduate what my future would look like, I might have told you about how I’d meet the man of my dreams during my college years, graduate and land a high-paying job, and get married and start a family shortly thereafter. As I progressed through college and into my early working years, and my plans weren’t exactly being realized, I started to despise the question, “where do you see yourself in 5 years?” I could never quite put my finger on it, because I definitely see the value in envisioning the future and making goals. But if I was answering that question honestly, I would have to say “I have no idea!”

Although I was introduced to my dreamboat in college, we didn’t develop feelings until years later. I spent plenty of time during those years feeling lonely, confused and rejected. Little did I know that progressing slowly from a long-term friendship to a relationship was the perfect way to find my perfect match. I always found meaning in the work I did, but I was by no means climbing the corporate ladder. Who knew that the progression of my career was the perfect path to being a stay-at-home mom, something that ambitious high school graduate had no idea I even wanted.

So, looking back on how things have fallen into place, I’m reminded that my plans don’t always work out on my timeline and that’s a very good thing. Along with my misconceptions of exactly how my future would unfold, I also had some specific plans for raising kids. I used to think that when I had children, I would make them smart. I would read to them and work with them, and because of the things I did, my kids would thrive. I could put in enough time, dedication and love and of course they would turn out exactly how I planned. Gosh, I was clueless.

My experience raising kids is not at all what I thought it would be like. I couldn’t have imagined the depth of joy or the sting of heartache that comes along with being a mom. Every parent wants to make things the best they can for their kids, to give them every opportunity for success. But so much of it is outside of our control. Having Gage as my first-born son has taught me so much about life and love, and just how much is out of my control. Another lesson Gage has taught me is to let him take the lead, rather than clinging to my own expectations.

Gage has made a ton of progress since the day we came home from the hospital with a tiny 5 pound baby boy. Before kids I expected to check off milestones like first word, first steps, learning colors, numbers and more. gage eats While Gage’s progress is much different than those typical milestones, it’s still a very big deal. Gage has been going to feeding therapy for about a month now. The instructor working with us acknowledged that things they are working towards can seem like very slow progress. And she’s right. It feels…so…slow. But no matter how slow, Gage is making progress. I need to stay focused on that instead of thinking about unmet expectations. That’s not always easy for a recovering control freak like myself.

Yesterday in therapy, Gage moved his hand to his mouth to bite off a tiny bit of strawberry that was stuck to his finger. I know how small that may seem, but in some ways, it feels huge. Gage will do things, or he won’t, in his own time. It’s hard to say what his future will look like. But if I’ve learned anything in the past 3 years it’s that what he’s able to accomplish is out of my control. His achievements are exactly that…his. They’re not a result of things I’ve done or how hard I’ve tried. Of course I want to do my best for Gage, but maybe the best I can do is celebrate and appreciate each bit of progress, no matter how slow, and love him just the way he is.

Comparison – The Thief of Joy

The quote “comparison is the thief of joy” has always resonated with me, but even more so since becoming a special needs parent. Some of my lowest points are when I give in to the temptation to compare our lives and Gage’s abilities with other families and kids. So I try to avoid that. Sometimes it’s easier than others. Luckily, one thing that hasn’t stolen any of my joy is having another child.

When I was pregnant with Caleb, I worried that it would be hard to watch him develop at a typical pace, and surpass Gage’s skill level. But that hasn’t been the case at all. Each one of Caleb’s accomplishments is celebrated and truly makes me happy, nothing else. It’s been amazing to watch him learn and grow. But one of the most amazing things to watch is the way Caleb interacts with his big brother.

brotherly love

These boys already have an incredible bond. Both their faces light up when they see the other one. Lately, Caleb has been into giving “kisses” or at least his version of them. He will lean in to give Gage a smooch, then just giggle and giggle. Gage eats it up. Of course, it’s not always sunshine and rainbows. Sometimes Caleb leans in for a kiss, then proceeds to smack Gage in the face or grab a fistful of his hair. There are moments of jealousy, when Gage is in my lap and Caleb wants to be, or when Caleb has my full attention and Gage protests.

I still have my own moments of jealousy too. Although it’s been easy for me to keep from comparing my kids to each other, it’s harder to for me not to compare my life to other parents. Maybe jealousy is the wrong word and self-pity is a more accurate description. It’s not like I sit around wishing that I had someone else’s life. I love our little family just the way we are. I know without the struggles and experiences we’ve had, I wouldn’t be the person I am today. Whether it’s self-pity, jealousy or something else, comparing my life to others definitely has the potential to steal my joy if I let it.

This morning was a perfect example of that. Evan and I were sitting in the hospital, waiting for Gage to get through his Dysport procedure. I reflected on some different treatment options we had just discussed with his neurologist, overwhelmed by what seems like such drastic measures. I complained to Evan that most parents don’t have to make decisions about whether or not their kids should have surgery to sever nerves in their spinal cord. As the words came out of my mouth, the tears welled up in my eyes. At that very moment, the doctor and nurse returned to let us know they were finished and Gage did great. That good news was enough to stop my tears in their tracks and bring a smile to my face instead. I’m so glad that my pity party was cut short. Rather than comparing the decisions we have to make with those of other parents, we just need to focus on Gage. All we can do is try to make the best choices we can for him. To care for him and love him the best way we know how. After all, isn’t that what all parents try to do for their children?

Gage’s life will look much different than most kids. His experience and development won’t look like his little brother’s. And that’s ok. I can still find so much joy in celebrating each of their accomplishments, even though they are drastically different. My experience as their mom won’t be typical either. Hopefully I’ll avoid the trap of comparison to other parents and focus on joy instead.

God’s Will vs My Will

I’m honored to share this guest post from my dear friend Jessie. She and I have known each other since college and grown closer over the years, especially since becoming moms on the exact same day! She is one of the kindest and most caring people I’ve ever met and the love of Jesus shines through her. With her permission, I wanted to share not only this post, but also a link to her blog about her journey with infertility. I hope you’ll feel as blessed by her words as I do. 

I have recently been thinking about God’s Will for our lives versus the will we have for our own lives.  It’s easy to say the words “Thy Will be done” but do we really mean it?  Do we really want God’s Will to be done in our lives when we think we know best? Life is full of sadness and grief and loneliness and many other negative feelings.  Do we really want our lives to rest in the hands of someone other than ourselves?   Someone who might make us go through that stuff?  I think the answer can be yes.  If we can recognize that this someone isn’t just anyone, but God.  The God who created the universe but also knows the number of hairs on each head.  The God who invented laughter and love.  The God who is the same yesterday, today, and tomorrow.  The God who built us and knows us better than we know ourselves.  The God who can use what Satan intends for our destruction, for His glory and for our blessing.  So do we dare lay our lives in God’s hands for His Will to be done?

Jessie: It was not my will to go through years of infertility and then the struggles of adoption.  I could say it was God’s Will for me to go through those difficult times, but really He allowed me to go through those times so that His Will could be done.  It was God’s Will for me to learn patience, to learn that I am not in control, and to be a parent of a child who needed a safe and loving home.  It was God’s Will to change my heart about the way I see children and to change even my purpose in life.  God chose me to be the mother to this amazing child who I get to call my own.  God’s Will has not only given me a blessing beyond words and smiles and tears, but has also given me an avenue to talk about my faith in a new way with renewed passion.

Hannah: It was not necessarily her will to have a child with special needs and then face each day with new challenges, fears, and even frustrations.  Hannah didn’t just have a child with special needs.  She had Gage.  Gage who is called Beloved by his Heavenly Father.  Gage whose heart has been molded and whose lungs have been breathed into by God Himself.  Gage whom God purposely placed in the arms of two amazing earthly parents.  I cannot speak for Hannah here, but I know she is already learning about what God’s Will is for her life.  I believe God’s Will is for Gage to grow up in a safe and loving home.  I also believe that God’s Will is for Hannah to speak the truth about the challenges she faces with the perspective of the love of Christ.  And to do so to an audience that only she can reach.  

Gage and Owen: While I do not know what God has in store for them yet, I do fully believe that both Gage and Owen are going to make an impact on those around them.  Those two adorable boys who were born on the same day.  One who was known about for 9 months, and one just 10 days.  One who was born and placed in the NICU, and one born and placed into another family’s arms.  Both are unconditionally loved by the One who created them and by their parents.  And both are uniquely different from others in their own way.  I am so thankful they have one another.

Gage and Owen

So even when the hard stuff seems to be thrown at us over and over again, knowing that we are God’s children and in His care, let’s be bold and shout, “Thy Will be done!”

Not The Road We Would Have Chosen

Tonight I attended a meeting for parents and caregivers of special needs kids. As we went around the room doing introductions, a common theme arose from staff members of the hosting and presenting organizations. They echoed the same sentiment—that they didn’t plan on a career working with the disabled community. But looking back on the steps that led them to where they are now, it’s clear they are exactly where they are meant to be. What a beautiful perspective.

It got me thinking about my own “path” and had me feeling rather reflective on my last few years. As they described things that were falling into place to land them in the jobs they now have, I was nodding in agreement, feeling like my own experience and circumstances have led me to right where I’m supposed to be – at home caring for my boys. It’s no secret how blessed I feel to be able to do this. But the path to get here was much different than I expected.

road

So often, song lyrics will hit me and speak to my heart. Some that have struck me over and over again are “it’s not the road we would have chosen,” from an Ellie Holcomb song “Find You Here.” Right or wrong, these words describe the way I feel about our journey with Gage. I’ve wrestled with the notion of whether or not I wish things were different. Despite our challenges, we’ve experienced insane amounts of joy over the last few years. Would that intense joy be present in our lives had things stayed simpler? I don’t know. But if I was given a choice to take this journey, without knowing what I know now, I can honestly say that I would not have chosen it. To me, there’s a distinguishable difference between acknowledging that and saying I wish things were different.

But that’s the thing about our life’s journeys. We don’t always get to choose. We may have the best laid plans, and they can change at the drop of a hat. Or it may be a slower and more subtle change, which is how I would describe my own path. After tonight’s meeting, in my reflective state, I was reading through old cards and letters and past journal entries. Looking back on words written months, even years ago, it became evident that God was working on something. I couldn’t see or even imagine it at the time, but He was using those past experiences to bring me to the place I’m at now—the place where I’m meant to be at this moment in time. It’s overwhelming to try and comprehend the ways God is working things out for good. Even now as I struggle to find the words to type, I have to stop and catch my breath (in a good way) with the realization that His plans for Gage’s life and my role as a mom were put into motion long before I even realized it.

I began writing this post with just a title to get started (that I blatantly ripped off a talented songwriter). It seemed to fit with the other emotions whirling around in my head and heart tonight about paths/roads/journeys. But I’m amazed at where I’ve ended up. It seems like every single lyric of that song perfectly describes how God walks our journeys with us. My words feel inadequate to explain how deeply and personally loved I’m feeling by God right now, so I’ll leave you with song lyrics instead. Hopefully they’ll offer some encouragement. Whether encouragement comes from a song, the love of a friend, the kindness of a stranger, or something else completely, my prayer is that we’ll all reach a point in our lives where we look back on our struggles and realize God brought us through them to get us exactly where we need to be.

Find You Here – Philippians 4:4-7
Ellie Holcomb, Rusty Varenkamp, Benji Cowart

It’s not the news that any of us hoped that we would hear
It’s not the road we would have chosen, no
The only thing that we can see is darkness up ahead
But you’re asking us to lay our worry down and sing a song instead

And I didn’t know I’d find You here,
In the middle of my deepest fear
But You are drawing near
You are overwhelming me with peace
So I’ll lift my voice and sing
You’re gonna carry us through everything
And You are drawing near
You’re overwhelming all my fears with peace

You say that I should come to you with everything I need
You’re asking me to thank You even when the pain is deep
You promise that You’ll come and meet us on the road ahead
And no matter what the fear says, You give me a reason to be glad

CHORUS

Here in the middle of the lonely night
Here in the middle of the losing fight
You’re here in the middle of the deep regret
Here when the healing hasn’t happened yet
Here in the middle of the desert place
Here in the middle when I cannot see Your face
Here in the middle with Your outstretched arms
You can see my pain and it breaks Your heart

CHORUS

Rejoice, Rejoice
Don’t have to worry bout a single thing
Cause You are overwhelming me with peace

Don’t have to worry bout a single thing
You’re gonna carry us through everything
Overwhelming peace