Gifts

Our boys sure got spoiled this Christmas. We’ve had so much fun these last few days playing with all their new toys and goodies they received! Personally, I’m not the best gift giver, but lucky for them, my boys are loved and cared for by so many people in their lives. Family, neighbors and even another mom at Gage’s school made sure they were well taken care of this Christmas.

magic trax

Evan and I were very well taken care of too! We got some very generous gifts from our family, but the best gifts this season aren’t things or money. It’s the chance to spend time with people we love, including each other. I am so grateful that Evan has a job that offers some wonderful breaks. The first day he had off, Evan dropped off and picked up Gage from school and it made a world of difference for me! As a family, we’ve been able to sleep in, share lots of cuddles, watch plenty of Netflix and just relax together. It has been amazing.

We’ve also been lucky enough to spend quality time with both sides of our family this season, and visit with some great friends that I don’t get to see as often as I’d like, and all their awesome kiddos too! kiddos On a quick trip to my hometown, we visited my Granny in her home and got some quality one-on-one time. Caleb had a blast playing with her nativity set and my favorite part of the visit was helping Granny make her bed. We spent a fun and food filled day with my parents and we were still in town for my other grandparents get together. The chance to share a hug and quick visit may always seem too short, but I feel so lucky that it happens at all and that my boys get a chance to know their great grandparents.

Our Christmas day was spent at Evan’s parents’ house with more food and fun. My in-laws have a gift for making anyone feel welcome and at home. I’ve heard more than one of Evan’s friends recount memories from childhood sharing the sentiment that if you could just find a way to get to the Wingo place, your day would be made! So every visit to their house is great, but Christmas is extra special because the focus is on the true meaning of the season. Someone always reads the story of the birth of Jesus from the Bible out loud and the room full of all of us just pause and take it in.

So at Christmas and always, I’m feeling so blessed by the gifts of time, rest and relationships. And thanking God for the best gift of all…the birth of our savior!

 

 

A Wonderful Year!

2017 has been another wonderful year for the Wingos! There have been some rough patches and new challenges, but through every single bit of it, God has shown us how faithful He is! There have also been plenty of fun and exciting things to celebrate. In March, Evan and I took a quick getaway to Branson for our 4th Anniversary. Even though it was only a 45 minute drive, we felt transported to a wintery wonderland because a fresh coat of snow covered the ground. It made for a gorgeous view from our dinner at Top of the Rock! Evan wrapped up his 11th year of teaching in May, and Gage bid his friends at daycare farewell as summer break started.

top of the rock

Summers for our family are full of fun, with all 4 family birthdays to celebrate! For our July birthdays (Evan’s, mine and Gage’s) we partied with friends at Table Rock Lake. We spent a gorgeous day on the water and enjoyed a swimming pool and basketball court at the vacation home where we stayed! Both boys are big fans of the water…but not so much of lifejackets.

For Caleb’s first birthday, we ate plenty of chocolate cupcakes! Caleb started walking just before turning one and now days he runs and climbs too! He definitely keeps me on my toes. Evan is trying his hardest to teach him good manners, with mixed results. He loves his big brother and shares plenty of kisses with him. Some of his favorite things are reading books and making messes.

cupcake 

 

In August, Gage wrapped up his final sessions with his early intervention therapists, then started at a brand new school. He goes to Shining Stars Early Childhood Center 4 mornings a week. He loves all his friends there. He also started feeding therapy at Missouri State 2 afternoons a week. The staff and students there are great and sessions are always messy and fun! Other highlights of Gage’s year include music therapy lessons over the summer, learning to take steps with a gait trainer, 3 weeks of intensive PT and winning over the hearts of everyone he meets with his contagious smile and laugh.

  

Evan took up a new hobby this year…reloading shot gun shells. He spends lots of time making sure they work well at target practice on his parent’s farm in Buffalo. The clay thrower they got earlier this year has proven to be a great investment as kids, grandkids and friends have all tried it out. One of Evan’s summertime goals was to shoot at least twice a week, which I think he accomplished for the most part.

Beginning in August, I returned to work for Ozarks Public Broadcasting. I work a few hours a week from home. It’s the perfect set up, allowing me to still spend my days with my boys which I love! I’m so grateful for the opportunity and the way it’s worked out for our family.

This fall, we visited the Wonders of Wildlife Aquarium & Museum and the boys LOVED it! We splurged for a season pass and have been 4 times so far! Evan went to Las Vegas for the first time to attend the SEMA Car Show for work. I celebrated my mom’s retirement with her and my sisters during a relaxing weekend in Rocheport. Evan’s taken a couple bird hunting trips and we love to fry up his bounty and enjoy it when he gets home!

   

Life moves quickly, and we feel so incredibly blessed to spend it with each other and all of our extended family and friends who love and support us. Thanks for being part of our tribe! Our prayer for each of you is that the coming year would be filled with love and you will find joy in every circumstance.

Lots of love,

Evan, Hannah, Gage & Caleb Wingo

Hush the Worry

I read some advice from author Ann Voskamp today urging us, in this busy Christmas season, to “hush the worry.” I needed that reminder, but it’s so much easier said than done. Worry has been weighing on me lately. I want to just let it go, and let my faith be bigger than my fear, but I keep struggling to accomplish that. What I’m most worried about is the unknowns the future holds…in terms of insurance coverage and treatment options for Gage, possibly including surgical treatments. It seems like we’re at the tipping point of facing some big, important decisions and sometimes it can seem like too much.

I go back and forth between trying to learn all I can and be as informed as possible to be the best advocate possible for Gage, to just wanting to take a Christmas paradebreak from everything and relax and enjoy my sweet child just the way he is. I think I’d do better if I could find a healthy way to balance both. Enjoying Gage is easy and natural. But when I’m in information gathering mode, I tend to become obsessive about it and then get overwhelmed. There are so many options and opinions and it’s hard to know which direction to go. Having more knowledge is a good thing, but it doesn’t always lead to having any more clarity.

I think my obsession with knowing as much as possible is rooted in a need for control. Control that I know I don’t have. I realize I can’t control Gage’s outcomes. But if I can learn about treatment options, ask for advice from other moms, read about first-hand experiences, and know which doctors in which locations do which treatments, then at least I’m doing something. And for what? To be left with my head spinning, struggling to catch my breath, lying awake late at night or early in the morning when I can’t seem to turn off my brain.

As I’m writing now and being honest about these feelings, I’m also realizing how important it can be to just take a step back. To stop, take a breath, and soak up all the good things in my life. Last night as it got late and Evan was heading to bed, he found me sitting in the office reading over some paperwork for Gage. He said “why don’t you put that down and come to bed?” and it was like I couldn’t. I felt obligated to read it through (which I’ve already done) in preparation for a meeting today. As I responded that I just needed to finish it so I would “know what it says” my voice caught in my throat. In that moment, Evan could see what I needed. But my obsessive need for the illusion of control outweighed my better judgement.

I feel like a broken record saying how much I need constant reminders not to worry. How I have to keep learning the same lessons over and over…that God is faithful, that we’ll be taken care of, that sometimes the best thing it to just slow down and enjoy our lives. But I wanted to share in case you’re in need of a reminder like that too. Maybe you’re caught up in the busy holiday season and feeling stretched thin. Maybe work demands at the end of the year are especially stressful. Maybe you’re a mom searching for control and feeling like you’re coming up short. In the midst of it all, may we step back from the worry and remember all the good.

“And we know that in all things God works for the good of those who love him, who have been called according to his purpose.” – Romans 8:28

Finding His Voice

Recently, we’ve been exploring options to help Gage to communicate better. We went through an Augmentative and Alternative Communication (AAC) evaluation with a team at MSU of OT and Speech students. Last Friday, Gage was able to try a variety of devices using everything from his eye gaze to a head switch and reaching with his hand. I left the clinic with an overwhelming amount of information about different systems.

mustache gage
I mustache you a question…

What I didn’t, and knew I wouldn’t, leave with was a “magic bullet” or quick fix to help Gage overcome his challenges communicating his wants and needs. That was never my expectation. But the process was still a good experience and taught me a lot. I’ve been googling things like AAC and reading blog posts from other moms on this topic for a while now. But to have a whole team of students and professors dedicating time and focusing efforts specifically for my kid was extremely valuable. It also forced me to become a little more educated on the topic in the best way that I know how…asking other moms.

In my experience of the world of special needs, I’ve learned that, hands down, the best source of information is a parent who has been there. I’m so lucky to have others to reach out to and can’t thank them enough for the time they spend responding to emails, texts and Facebook messages. Whether it’s a relative I’ve known my whole life, a lake house neighbor I rarely see or a therapist who chose her career path after having her own child with special needs, this network of support is priceless to me. Before I was bold enough to ask for advice, another mom reached out to me, just to let me know it was ok to experience the pain I felt while simultaneously celebrating even the smallest accomplishments.

So, when I felt overwhelmed by all the information about AAC, I sought advice from another mom with more experience and WAY more knowledge than I have. She shared some excellent advice and insights, with an important reminder that communication isn’t just one thing. There are so many different forms and they all matter.

towhead gageGage has his own way of doing things. He will communicate in his own way too. I hope we’ll be able to help him find a way to express himself more effectively, but I fully expect that to take practice and patience. Luckily, the MSU Speech Clinic is willing to offer ongoing support to help us try out things and find a good fit. As we discussed coming on a regular basis for additional training, I told all the students and staff that I’m willing to do that, even if it means adding more appointments to our schedule each week. I’ll commit to dedicating time to work toward communication goals to help hold me accountable. My emotions caught me a little off guard as I told a room full of college kids that my main job is being Gage’s mom and loving him. Of course I’m willing to work with him on things outside of therapy time, but in all honesty, I fall short. I’m so appreciative of professionals who work so hard to help Gage and who help me as well.

I was excited for a plan of more time and support to help Gage find his voice, but I was honestly dreading the thought of even more appointments added to our calendar. Luckily the team at MSU understands the need for practicality and suggested piggybacking on the feeding therapy times we already have…hooray! Saving another trip in the car may not seem like a big deal, but it counts as a victory in my book. And it gets even better. Monday morning as I drove to pick Gage up from school, I was on the phone with a friend complaining about all the trips we make back and forth. It got me thinking how nice it would be to go straight from school to our next appointment, rather than rushing home to eat, only to load up and head out the door again. Then, that afternoon at feeding therapy, the instructor told me their class schedule had changed and we might be able to have therapy time, for both feeding and AAC, in one visit right after leaving school! It was like God answered a prayer I hadn’t even prayed yet!

Who knows what’s in store for Gage in the future when it comes to finding his voice. I’m excited for the potential with AAC and still trying to wrap my head around all the different offerings available. I’m also trying to manage my expectations realistically. But our experience so far has showed me what I’m reminded of over and over again through our journey…God is faithful.